Friday, November 7, 2008

"CoRpOrAtE InSaNiTy"





"CoRpOrAtE InSaNiTy"


Take all this and they take all that,
to get the care they wouldn't give,
they punish me of all the funds I have
not even caring of who did this;

To be treated as though I did a crime is wrong,
as I suffer with this disease each day,
most of all,my employer,they lied so long
They just refuse to believe and release my pay;


To invent all those lies,to cause me so much grief,

Twas your intention right from the start,

you're so wrong to try,to what you couldn't see
I just want my pension,why must it be so hard;

Sunday, November 2, 2008

SIDE EFFECTS OF PEOPLES VIEW OF RSD


Other peoples comments ARE a side-effect of RSD, lol! Quote: Don't you wish that you had something witty to say when someone says the inevitable.. But you don't look sick?! Well now you do, Thanks to our message board members we have a WHOLE list !! Even if you feel you can't really use these answers when people ask, you can most certanly think of them and giggle. And you look Intelligent! And you don't look stupid! Maybe it's Maybelline. But I tried so hard! Oh? You don't look like the bearer of prejudices. We all make mistakes * Cheery Smile * Really? That's odd! Really? (Look down at yourself) I'm cured!!! Where did you get my medical degree from? For when people are are being rude- I don't look ( Insert age here) either, but it doesn't change the fact I am! Why thankyou honey, that's so sweet of you to say that! I wasn't aware illnesses came mounted on a billboard! Huh? What does sick look like? There's a well person striving to escape this body ! How sweet of you to say that. I've been so tired, I haven't bathed in three days. And I was sort of worried about going out in public looking like this. So thanks for the compliment. It's really made my day. And I guess your X-ray vision isn't working too well today either! You should see how corroded some of my parts are on the inside. Some of my organs are in their 90's, some in their 70's. It's hard to keep track! ! ! Yeah, isn't it great. I guess I'm the healthiest looking sick person you've ever seen, huh? Isn't it weird how looks can deceive. Yep well it's nothing to get excited about ! Well I'm NOT sick, my body is! What do you think "Don't judge a book by it's cover" means? Just because I look ok, doesn't mean I'm fine. I work hard to look this good. Are you flirting with me? I have good and bad days, but I'll never be the way I was before I got sick. Darn! I told Q this was the wrong host body!! I should go back to the mother ship. This is my Alter-Ego! Should I get a refund? It's really good to know that the 4 hours it took me to get out of bed, and get ready this morning wasn't wasted! Really? That's not what my psychiatrist told me. Oh gosh I didn't realise it was you who was blind. I mean people told me but I mus have gotten muddled, its the drugs you know, but wow you're coping so well.……. *continue babbling til they back away* You should see the straight jacket they make me wear! Thanks! Funny, knowing that i dont look sick, gives me a new appreciation and patience for the people i might meet who look healthy and may not be. Oh yeah? Check this out (show them something freaky) Really? Ok lets trade bodies for the day! What exactly does (insert illness) look like? Ignorance is bliss I guess! Would a bit of vomit help? Because I'm feeling quiet nauseous. I guess hard work pay off! Well of course not, I look like (insert name here) Duh! What is this "sick" you speak of? Thanks! I only needed one painkiller today instead of 5! oh good..... because "not sick" is just the look I was going for!

Sunday, April 27, 2008

WHAT CRPS OR RSD IS.SUPPORT IS AVAILABLE.

Complex regional pain syndrome (CRPS) is a chronic condition characterized by severe pain following injury to bone and soft tissue. The International Association for the Study of Pain has divided CRPS into two types based on the presence of nerve lesion following the injury. Type I, also known as Reflex sympathetic dystrophy (RSD) or algoneurodystrophy, does not have demonstrable nerve lesions, while type II, also known as causalgia, has evidence of obvious nerve lesions. The cause of these syndromes is currently unknown.The condition currently known as CRPS was originally described by Weir Mitchell during the American Civil War, who named the condition causalgia. In the 1940s, the term reflex sympathetic dystrophy came into use to describe this condition, based on the theory that sympathetic hyperactivity was involved in the pathophysiology (Evans, 1946). Misuse of the terms, as well as doubts about the underlying pathophysiology, led to calls for better nomenclature. In 1993, a special consensus workshop held in Orlando, Florida provided the umbrella term, complex regional pain syndrome, with causalgia and RSD as its subtypes The symptoms of CRPS usually occur near the site of an injury, either major or minor, and usually spreads beyond the original area. It may spread to involve the entire limb and, rarely, the opposite limb. The most common symptom is burning pain. The patient may also experience muscle spasms, local swelling, increased sweating, softening of bones, joint tenderness or stiffness, restricted or painful movement, and changes in the nails and skin.The pain of CRPS is continuous and may be heightened by emotional stress. Moving or touching the limb is often intolerable. Eventually the joints become stiff from disuse, and the skin, muscles, and bone atrophy. The symptoms of CRPS vary in severity and duration. There are three variants of CRPS, previously thought of as stages. It is now believed that patients with CRPS do not progress through these stages sequentially and/or that these stages are not time limited. Instead, patients are likely to have one of the three following types of disease progression:Type one is characterized by severe, burning pain at the site of the injury. Muscle spasm, joint stiffness, restricted mobility, rapid hair and nail growth, and vasospasm (a constriction of the blood vessels) that affects color and temperature of the skin can also occur.

Type two is characterized by more intense pain. Swelling spreads, hair growth diminishes, nails become cracked, brittle, grooved, and spotty, osteoporosis becomes severe and diffuse, joints thicken, and muscles atrophy.

Type three is characterized by irreversible changes in the skin and bones, while the pain becomes unyielding and may involve the entire limb. There is marked muscle atrophy, severely limited mobility of the affected area, and flexor tendon contractions (contractions of the muscles and tendons that flex the joints). Occasionally the limb is displaced from its normal position, and marked bone softening is more dispersed.

No specific test is available for CRPS, which is diagnosed primarily through observation of the symptoms. However, thermography, sweat testing, x-rays, electrodiagnostics, and sympathetic blocks can be used to build up a picture of the disorder. Diagnosis is complicated by the fact that some patients improve without treatment. A delay in diagnosis and/or treatment for this syndrome can result in severe physical and psychological problems. Early recognition and prompt treatment provide the greatest opportunity for recovery.

Physicians use a variety of drugs to treat CRPS, including antidepressants, corticosteroids, vasodilators, gabapentin, and alpha- or beta-adrenergic-blocking compounds. Elevation of the extremity and physical therapy are also used to treat CRPS. Injection of a local anesthetic, such as lidocaine, is usually the first step in treatment. Injections are repeated as needed. TENS (transcutaneous electrical nerve stimulation), a procedure in which brief pulses of electricity are applied to nerve endings under the skin, has helped some patients in relieving chronic pain. Neurostimulation (spinal cord stimulators) may also be surgically implanted to diffuse the pain by replacing it with a tingling sensation. These devices place electrodes either in the epidural space (space above the spinal cord) or directly over nerves located outside the central nervous system. Implantable drug pumps may also be used to deliver pain medication directly to the cerebrospinal fluid which allows the use of powerful opioids to be used in a much smaller dose than when taken orally. Ketamine infusion to treat CRPS has been described (Correll et al, 2004).

Surgical, chemical, or radiofrequency sympathectomy — interruption of the affected portion of the sympathetic nervous system — can be used as a last resort in patients with impending tissue loss, edema, recurrent infection, or ischemic necrosis (Stanton-Hicks et al, 1998).

Physical therapy is also an important part of treatment, though it should be noted that many patients are incapable of participating in physical therapy due to subsequent muscular and bone problems. People struggling with CRPS often develop guarding behaviors where they avoid using or touching the affected limb. Unfortunately, inactivity can exacerbate the disease and perpetuate the pain cycle. Physical therapy works best for some patients, especially goal-directed therapy, where the patient begins from an initial point, regardless of how minimal, and then endeavors to increase activity each week. While the unpredictability of this illness often causes a frustrating pattern of progress and regress, it is essential to continue to try to increase and normalize physicial activity.

Prognosis
Good progress can be made in treating CRPS if treatment is begun early, ideally within 3 months of the first symptoms. Early treatment often results in remission. If treatment is delayed, however, the disorder can quickly spread to the entire limb and changes in bone and muscle may become irreversible. In 50 percent of CRPS cases, pain persists longer than 6 months and sometimes for years.

Similar disorders
CRPS has characteristics similar to those of other disorders, such as shoulder-hand syndrome, which sometimes occurs after a heart attack and is marked by pain and stiffness in the arm and shoulder; Sudeck syndrome, which is prevalent in older people and women and is characterized by bone changes and muscular atrophy, but is not always associated with trauma; and Steinbrocker syndrome, which includes symptoms such as gradual stiffness, discomfort, and weakness in the shoulder and hand.

The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health (NIH), supports and conducts research on the brain and central nervous system, including research relevant to RSDS, through grants to major medical institutions across the country. NINDS-supported scientists are working to develop effective treatments for neurological conditions and, ultimately, to find ways of preventing them.Investigators are studying new approaches to treat RSDS and intervene more aggressively after traumatic injury to lower the patient’s chances of developing the disorder. In addition, NINDS-supported scientists are studying how signals of the sympathetic nervous system cause pain in RSDS patients. Using a technique called microneurography, these investigators are able to record and measure neural activity in single nerve fibers of affected patients. By testing various hypotheses, these researchers hope to discover the unique mechanism that causes the spontaneous pain of RSDS and that discovery may lead to new ways of blocking pain.Other studies to overcome chronic pain syndromes are discussed in the pamphlet “Chronic Pain: Hope Through Research,” published by the NINDS.
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COMPLEX REGIONAL PAIN SYNDROME (CRPS)

aka REFLEX SYMPATHETIC DYSTROPHY (RSDS)

RSD is also known as Complex Regional Pain Syndrome (CRPS) type 1. CRPS type 2 is causalgia which is identical to type 1 except that it is caused by a nerve lesion. Recent evidence suggests that CRPS1 is also from nerve damage.(Please see "Evidence of Nerve Damage in CRPS1" on WHAT'S NEW? page.

Other names:

* causalgia
* algodystrophy
* postraumatic dystrophy
* Sudeck's atrophy
* shoulder-hand syndrome


RSD/CRPS has existed since the American Civil War (1861-5) where Dr. Silas Weir Mitchell documented cases of causalgia in Civil War soldiers.

RSD/CRPS is a multi-system syndrome with diverse symptoms characterized by chronic pain. Usually it affects one or more extremities but it can affect any part of the body. Due to dilation or constriction of the blood vessels, the blood supply to the limb (hand, foot, hip, shoulder) is affected. The nerves, skin, muscle and bone are also involved.
RSD is a debilitating disease which can impair the ability of the limb to function or function can be lost.

How do you get RSD/CRPS?

* a soft tissue injury due to minor trauma in 65% of cases e.g. sprain, twisted ankle etc.
* fracture
* surgery
* certain cervical spine or spinal cord disorders
* infections, stroke, heart attack, repetitive motion disorder, or cumulative trauma e.g.. carpal tunnel.
* certain medications or venipuncture in rare cases

What are the symptoms?

* PAIN usually burning, severe, constant and in an area other than the primary injury site
* SWELLING usually localized but can involve entire limb
* SKIN CHANGES: TEMPERATURE or COLOUR: E.G. dystrophy, dryness, tissue atrophy e.g.. can be cool and pallid or mottled; or warm and red with increased sweating.
* LIMITED AROM (active range of motion) in the affected part
* INCREASE OF ABOVE COMPLAINTS after exercise

What other symptoms are there?

* motor dysfunction e.g. tremor, weakness, dystonia, spasms
* dystrophy e.g. muscle wasting
* limbic system dysfunction e.g.. insomnia, agitation, anxiety, depression, poor memory or judgment
* hair and nail changes
* bone changes e.g.. osteoporosis
* joint tenderness and swelling

How is it diagnosed?

There is NO SINGLE TEST available to diagnose RSD/CRPS.

* thorough medical history noting sign and symptoms
* examination by a qualified expert physician
* thermography which measures the heat emitted from the body and senses skin temperature differences (may help)

DO YOU SUSPECT RSD?

"If the pain is out of proportion to the injury, there is stiffness and inflammation following a seemingly minor trauma e.g. twisted ankle, dropping item on foot, sprain , suspect RSD. The pain is described as burning, shooting, stabbing or a "hot poker". If the pain persists longer than the expected healing time of the injury, suspect RSD."

(from: Hooshmand, H MD CRPS: Diagnosis and Management Pain Digest Spring Verlager 1999).

TREATMENT IS CRUCIAL WITHIN THE 0-3 or 3-6 MONTHS when the disease responds best. It is essential that the person be referred to the proper specialist for treatment as soon as possible. After 6 months you can still receive treatment however avoid delays and see a specialist as soon as possible for best results.



DELAY IN TREATMENT COULD MEAN A LIFETIME OF CHRONIC PAIN for the patient. Without treatment, the disease could eventually become resistant to treatment.

There is also support sites available to share info and meet people with CRPS/RSD
ONE SUCH SITE IS CALLED" FIGHTING RSD" LOCATED AT>>>>>>>>>>>>
http://www.myrfn.com/fightingrsd/

http://fightingrsd.spruz.com























Monday, April 16, 2007

CORPORATE POWERPLAY

First destroy the credibility of the person with unsubstantiated lies using the leverage of their position,it comes in to factor, which brings in the powerplay, then destroy their character with more crap,then their attitude, daily record, all falsified,total book of lies,but after the powerplay I was OUT OF OPTIONS I gave in TO DURESS...
But explain how I can be doubted for months by my employer, finally I find help, out of town, and I get treated as if I was the guilty one and I'm the one who is SUFFERING,EVERY SINGLE f.... DAMN DAY,AND I STILL GET TREATED AS IF I WAS THE ONE AT FAULT,EVEN MY EMPLOYER IN THIS GREAT COUNTRY OF OURS, was,has,and still is,TREATING ME LIKE I'M LYING, AND I GOT 4 DOCTORS, SPECIALISTS WHO HAVE BEEN TREATING ME FOR OVER 2 YEARS,THE FIRST YEAR I SPENT LOOKING FOR SOME ONE TO HELP ME WITH THE PAIN I WAS HAVING, BUT NO ONE WOULD LOOK LISTEN OR HELP ME AROUND HERE,IT WAS AS IF I MY REPUTATION WAS DESTROYED AROUND HERE BY SOMEONE,SO I WAS DESPERATE AND IN DURESS,MANY MONTHS OF NO INCOME,SALVATION ARMY FED ME,FOOD BANKS,MEALS ON WHEELS,13 YEARS AT MY EMPLOYER AND THEY LEAVE ME FLAT TO STARVE AND DIE,WHY DO I GET THIS,AFTER 13 YEARS EXCELLENT ATTENDANCE, WORK RECORD,AND TO THIS DAY I DON'T THINK ANYBODY KNOWS ABOUT MY EXCELLENT RECORD BUT ME,OR IF ANYONE REALLY BELIEVES IT AFTER WHAT WAS SAID, WHO WOULD BELIEVE IT...AFTER 16 MONTHS OF NEXT TO NO INCOME,10 MONTHS OF NO INCOME,VIRTUALLY ON THE VERGE OF LOSING MY HOME,IN PAIN,ON A LOT OF MEDICATIONS.. I SETTLED IN MEDIATION,AND MY EMPLOYER NOW FEELS, IF IT WAS A SERIOUS ILLNESS YOU WOULDN'T HAVE SETTLED OUT OF COURT ,EVEN THOUGH I'VE BEEN ON DISABILITY FOR 3 YEARS NOW,.AND MY MANAGER WHO DOUBTED ME FROM THE BEGINNING HARASSING ME AT HOME CONSTANTLY WHEN I CALLED IN SICK, HE HAD A LARGE HAND IN ALL MY PROBLEMS,I HAD FILED A GREIVANCE AGAINST HIM 3 MONTHS EARLIER,AND THE NEUROLOGIST WHO SAID I'M JUST A SCAMMER AND WOULDN'T DO ANY TESTS,THEN AFTER I FIND A SPECIALIST WHO DOES THE TESTS AND REALIZES THERE IS A PROBLEMTHESE PEOPLE ARE SO COLD CALCULATED AND DETERMINED AND THERE WAS NOTHING I COULD DO OR SAY AND NOBODY WOULD LISTEN OR HELP ME LEGALLY OR AS A FRIEND AS MY WHOLE LIFE HAS BEEN DESTROYED BY THIS ILLNESS AND MY REPUTATION WAS ASSASSINATED,BUT I WILL LIVE ON AS A NEW IMPROVED ,WHAT A WAY TO TREAT A HARD WORKING CANADIAN TAXPAYER AND (MISTREATED HUMAN BEING)
R.S.J.